Charity gives hope to muscular dystrophy patients
The Muscular Dystrophy Association Singapore (MDAS) is a voluntary welfare organisation committed to uplifting the lives of people with muscular dystrophy (MD). It aims to maximise the quality of life for those with Muscular Dystrophy and their families, integrate them into society and support research towards a cure.
Muscular dystrophy is the name given to a large group of muscle diseases characterised by the development of muscle weakness, wasting and contractures, that are usually progressive and sometimes life threatening.
These diseases often manifest in childhood, although some may begin in adulthood. Each disease is caused by inherited gene abnormalities and there is currently no cure for MD.
Often, the disease leaves the person dependent on a wheelchair, and also highly dependent on their family and caregivers.
Founded in 2000, the association is a member of the National Council of Social Service (NCSS) and has Institution of Public Character status.
MDAS extends its membership privileges to all children, youth and adults with MD as well as their families. The association’s current membership stands at 303 people, of which 120 are those with muscular dystrophy.
MDAS’ services and programmes are geared towards building the confidence and independence of those with MD, to inspire them to look beyond their limitations.
Their programmes include counselling, medical equipment grants, sports and recreation programmes, medical research as well learning programmes for unemployed or out-of-school individuals.
One volunteer, 21-year-old Tham Sai Leong, says that witnessing MDAS’ work has inspired him.
I am inspired by (the beneficiaries’) optimism to look beyond their limitations and continue to be involved in social activities. They have their personal dreams and are supportive of each other," he said.
The student volunteer also shared that the “unfaltering motivations of beneficiaries” and the “dedication shown by caregivers, staff and other volunteers” inspired him to continue volunteering with the organisation.
Being a self-help organisation with a small number of staff, many donations, partnerships and volunteers are needed yearly for MDAS to continue its work. Your help – big or small – can go a long way in helping them do more for those with MD.
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To find out how to help, visit http://www.mdas.org.sg.
Yahoo! Singapore 9
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